Jade Update – things went *great*

The catheterization procedure went well. No issues, no complications. It did take Jade almost the entire observation period to wake up, but that didn’t surprise me, because I also take a long time to wake up from anesthesia, so she must take after me.

We learned a few things today:

  • Jade does still have the VSD (hole between the ventricles)
  • Jade does have a Pulmonary Stenosis (narrowing of the pulmonary valve)
  • BUT, it seems tissue from her tricuspid valve is beginning to grow over the VSD and the hole has gotten smaller since the last time they saw her
  • While she does have a Pulmonary Stenosis, it’s not severe enough to affect her health or require intervention at this time
  • The anomalous muscle bands are not anywhere that poses a risk, so they want to leave them alone.

In short, not only do they want to put off surgery, but at this point, it looks like she may never need surgery. The doctor said there is *small* chance that things could change as her heart grows, but *most likely* things will continue to improve so now they don’t think she’ll need an operation. Praise God!!

Alvin and I haven’t quite wrapped our mind around that yet. We’ve gotten so used to the idea that she (according to the doctors for months now) would *definitely* need surgery, that suddenly being told she most likely won’t is just weird to us. It’s almost like we don’t want to let ourselves really believe it, because we’re afraid something will change again. I think it’ll sink in soon, though.

She will continue to see her cardiologist, then gradually going to a once every 6 months schedule, and then maybe even once a year after a while. She will also, as she gets older, likely need antibiotics before any dental visit – to prevent bacteria from her mouth from going to her heart through any bleeding from dental work/cleaning. This is fairly common for kids with a VSD, even a mild one, so that’s not surprising.

Oh, a couple other things we learned today – Jade is a lightweight and an angry drunk. The sedative they gave her was supposed to work in 10-15 minutes, but we saw the effects immediately, but while it did seem to mellow her it did not make her in any way more cooperative while they prepared her for the procedure. As long as they left her alone, she was loopy and happy, but as soon as they tried to mess with her, she would get angry. She fought them the whole time they were putting on the numbing cream for her iv and catheter sites, weighing her, checking her vitals and then she eventually just conked out, but continued to fuss and cry if she was messed with, even in her sleep. Of course the general anesthesia knocked her out enough that they didn’t have any issues performing the procedure – everything went according to schedule.

She spent the entire recovery time (while she was sleeping) fussing and fighting at me anytime someone came to check her bandages or her blood pressure. She’s quite the feisty little girl. Even though, she *still* managed to charm everyone who saw her, even getting visits from nurses who weren’t involved in her case. Once she was awake, she was her sweet self again, for the most part, and giving Bronx Cheers to anyone who’d look at her.

Thanks so much for all the thoughts and prayers offered up on her behalf! God has heard and granted those requests.

We still need to sort out what’s causing the feeding and weight issues, but at least we’ve ruled out the heart. Who knows, perhaps she’s just destined to be a tiny girl and eat like a bird. We’ll probably take her to a pediatric gastroenterologist if she continues to have issues.

Here are some pictures from the day…

Jade with Dad before we went back to the Cath Lab:

Jade and Daddy

Jade feeling the effects of her sedative:

Jade feeling the effects of her sedative

“Stop MESSING with me”:

Stop MESSING with me!

Sleeping it off:

Sleeping it off

Sleeping it off (II)


5 Replies to “Jade Update – things went *great*”

  1. I’m so glad it went well!

    I can imagine this news, while great, is still sort of hard to comprehend. I am sure that NOTHING is scarier than having a sick child, so I know my story doesn’t compare, but I’ll share it anyway: when I was pg with U, I was diagnosed with a pulmonary embolism. 3 nights in hospital, giving myself injections – really big deal. Then they reversed my diagnosis. Even though I wanted to be happy, it was the scariest thing ever. Way scarier than my diagnosis. “Take these meds or you’ll die” is scary. Being told you aren’t allowed to take those lifesaving meds is terrifying. It’s like that safety net is ripped away. I wanted to be grateful that I was okay, but I wasn’t. And I felt bad aobut that…

    Anyway, enough about me – just knpw you’re in my thoughts!

  2. I was in grateful tears when I heard about this around noon and now in more detail. I have been praying and begging the Lord to touch Jade that she may not need surgery or in His way to take care of her. He must have heard me and a lot of people’s prayers. Thank you,Lord. We bow down and give you our hearful thanks.

  3. I replied earlier, but I guess the post didn’t go through – so sorry!!

    Thank you Mom Chao – I know you’ve been pouring your heart out in prayer. 🙂

    Melissa – Exactly!! I think you’ve hit the nail squarely on the head.

    When you’ve spent 3 months being told that there is no question that surgery *will* be necessary at some point, and will be what fixes her issues and prevents other issues (slightly increased risk of endocarditis compared to people without a heart defect, needing antibiotics for dental visits, etc.), you start seeing surgery as a positive thing – a solution, an end to the whole heart issue all together.

    So when they suddenly, unexpectedly, tell us she won’t have the surgery, instead of just being overjoyed, at first, it almost seems like they’re something she needs away from her. I know that sounds odd, but that really is how it felt because of our mindset over the past few months. Of course, over time, it’ll sink in that she *doesn’t* need it anymore, but I think it’ll take a little while.

  4. Hi awesome Chao family,

    Praise God! I’m so glad that things went well!

    Heavenly Father,

    Thank you for beginning to close the hole in Jade’s heart. Please continue to close it. All the praise and glory goes to you! In Jesus name, Amen!

    In His Love,


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